UPDATE, April 9, 9:30 a.m.: California Sen. Scott Wiener announced Monday that he would pull the bill from this legislative session and delay it until 2020 in order “to see if consensus could be reached between the bill’s supporters and medical associations.”
A California lawmaker has introduced a landmark bill to ban doctors from performing medically unnecessary surgeries on intersex children until the child can give informed consent.
As many as 1.7 percent of people are born with chromosomal or anatomical differences that put them outside the typical definition of “male” or “female.” About one in 2,000 babies is different enough that doctors may recommend surgery, but there’s no comprehensive U.S. database tracking the procedures. While some surgeries are medically necessary—to allow babies to pass urine, for example—others are performed to “normalize” genitalia.
The California bill, introduced last week by state Sen. Scott Wiener (D-San Francisco), outlines a process for intersex minors to give written consent to surgery after being informed of the risks, benefits, and alternatives. It allows surgeons to operate on intersex children without their consent if the operation cannot be safely deferred.
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“We believe that people should be able to make their own decisions about their own body,” Wiener said at a news conference Monday. “They certainly can’t make that decision as a baby.”
As Rewire.News reported, intersex patients have spoken out about how surgeries performed when they were too young to understand—much less give consent—have deprived them of sexual pleasure, sterilized them, traumatized them, or altered their bodies to reinforce a gender assignment that is not theirs. While human rights groups and three former U.S. surgeons general have condemned medically unnecessary surgeries on intersex children, it’s unclear whether the procedures have declined in recent years.
The California measure would be the first mandate of its kinds in the United States after state legislators made history last year by passing the first-ever legislation to address the rights of intersex people. The non-binding resolution, authored by Wiener, recognized intersex people as “a part of the fabric of our state’s diversity” and called for deferring surgeries “until the child is able to participate in decision making.”
At hearings on the measure, urologists who perform the surgeries defended the procedures, at times conflating medical necessity with social normalcy.
“These are not gender-reaffirming surgeries … these are children who have congenital anomalies like a cleft palate … that’s fixed,” Dr. Larry Baskin, chief of pediatric urology at the University of California San Francisco, said during one hearing. “We’re restoring normal anatomy.”
Violating the proposed California law against medically unnecessary surgeries on intersex babies would result in disciplinary action by the California medical board.
“We’re not anti-surgery, we’re pro-consent,” Hans Lindahl, communications director for the intersex advocacy group interACT, said at Monday’s news conference. “We want the same rights as anyone else to be able to grow up and make decisions about our own bodies.”